Myth: People with epilepsy are "epileptics."

Fact: The word "epileptic" should not be used to descrbe someone who has epilepsy, as it defines a person by one trait or problem. A label is powerful and can create a limiting and negative stereotype. It is better to refer to someone as "a person with epilepsy" or to a group of people as "people with epilepsy."

Myth: People with epilepsy are seldom brain-damaged.

Fact: Epilepsy is a disorder of brain and nerve-cell function that may or may not be associated with damage to brain structures. Brain function can be temporarily disturbed by many things, such as extreme fatigue; the use of sleeping pills, sedatives, or general anesthesia; or high fever or serious illness. "Brain damage" implies that something is permanently wrong with the brain's structure. This kind of damage may occur with severe head injury, cerebral palsy, Cerebral palsyA condition with various combinations of impaired muscle tone and strength, coordination, and intelligence.Close or stroke, or it may occur long before birth, with malformation or infection. Injuries to the brain are the cause of seizures in some people with epilepsy, but by no means all of them.

Brain injuries range from undetectable to disabling. Although brain cells usually do not regenerate, most people can make substantial recoveries. Brain damage, like epilepsy, carries a stigma, and some people may unjustly consider brain-injured patients "incompetent."

Myth: A seizure disorder is epilepsy.

Fact: Because some people fear the word "epilepsy," they use the term "seizure disorder" in an attempt to separate themselves from any association with it. However the term seizure disorder means the same thing as epilepsy. A person has epilepsy or a seizure disorder if he or she has had two or more seizures that "come out of the blue" and are not provoked—even if the problem first develops in adulthood or is known to be caused by something like a severe head injury or a tumor.

Myth: Seizures cause brain damage.

Fact: Single tonic-clonic seizures lasting less than 5-10 minutes are not known to cause brain damage or injury. However, there is evidence that more frequent and more prolonged tonic-clonic seizures may in some patients injure the brain. Prolonged or repetitive complex partial seizures (a type of seizure that occurs in clusters without an intervening return of consciousness) also can potentially cause long-lasting impairment of brain function.

Some people have difficulty with memory and other intellectual functions after a seizure. These problems may be caused by the aftereffects of the seizure on the brain, by the effects of seizure medicines, or both. Usually, however, these problems do not mean that the brain has been damaged by the seizure. There may be a cumulative, negative effect of many tonic-clonic or complex partial seizures on brain function, but this effect appears to be rare.

Myth: People with epilepsy are usually cognitively challenged.

Fact: People with epilepsy usually are not intellectually challenged. Many people mistakenly believe that people with epilepsy are also intellectually or developmentally challenged. In the large majority of situations, this is not true. Like any other group of people, people with epilepsy have different intellectual abilities. Some are brilliant and some score below average on intelligence tests, but most are somewhere in the middle. They have normal intelligence and lead productive lives. Some people, however, may have epilepsy associated with brain injuries that may cause other neurological difficulties that affects their thinking, remembering, or other cognitive CognitivePertaining to the mental processes of perceiving, thinking, and remembering; used loosely to refer to intellectual functions as opposed to physical functions.Closeabilities. The cognitive problems may be the only problem in most people. Less frequently, some people have other developmental problems that can affect the way they function and live.

Myth: People with epilepsy are violent or crazy.

Fact: The belief that people with epilepsy are violent is an unfortunate image that is both wrong and destructive. People with epilepsy have no greater tendency toward severe irritability and aggressive behaviors than do other people.

Many features of seizures and their immediate aftereffects can be easily misunderstood as "crazy" or "violent" behavior. Unfortunately, police officers and even medical personnel may confuse seizure-related behaviors with other problems. However, these behaviors merely represent semiconscious or confused actions resulting from the seizure. During seizures, some people may not respond to questions, may speak gibberish, undress, repeat a word or phrase, crumple important papers, or may appear frightened and scream. Some are confused immediately after a seizure, and if they are restrained or prevented from moving about, they can become agitated and combative. Some people are able to respond to questions and carry on a conversation fairly well, but several hours later they cannot remember the conversation at all.

Myth: People with epilepsy are mentally ill.

Fact: Epilepsy is not the same as mental illness and in fact, the majority of people with seizures do not develop mental health problems. Yet recent research is showing that problems with mood, such as anxiety and depression, may be seen more frequently than previously thought. The causes are not always known. In some people, the cause and location of the seizures may affect certain brain areas and contribute to mood problems. In others, side effects of treatments and the challenges of living with epilepsy may affect a person's feelings and behavior. If these problems occur, a variety of treatments are available.

Myth: Epilepsy is necessarily inherited.

Fact: Most cases of epilepsy are not inherited, although some types are genetically transmitted (that is, passed on through the family). Most of these types are easily controlled with seizure medicines.

Myth: Epilepsy is a life-long disorder.

Fact: Generally, people with epilepsy have seizures and require medication for only a small portion of their lives. About 60 % of people who develop seizures have epilepsy that can be easily controlled and is likely to remit or go away. However, about 25 % may develop difficult to control seizures and likely will require lifelong treatment. More than half of childhood forms of epilepsy are outgrown by adulthood. With many forms of epilepsy in children and adults, when the person has been free of seizures for 1 to 3 years, medications can often be slowly withdrawn and discontinued under a doctor's supervision.

Myth: Epilepsy is a curse.

Fact: Epilepsy has nothing to do with curses, possession, or other supernatural processes, such as punishment for past sins. Like asthma, diabetes, and high blood pressure, epilepsy is a medical problem.

Myth: Epilepsy should be a barrier to success.

Fact: Epilepsy is perfectly compatible with a normal, happy, and full life. The person's quality of life, however, may be affected by the frequency and severity of the seizures, the effects of medications, reactions of onlookers to seizures, and other disorders that are often associated with or caused by epilepsy.

Some types of epilepsy are harder to control than others. Living successfully with epilepsy requires a positive outlook, a supportive environment, and good medical care. Coping with the reaction of other people to the disorder can be the most difficult part of living with epilepsy.

Acquiring a positive outlook may be easier said than done, especially for those who have grown up with insecurity and fear. Instilling a strong sense of self-esteem in children is important. Many children with long-term, ongoingic illnesses—not only epilepsy but also disorders such as asthma or diabetes—have low self-esteem. This may be caused in part by the reactions of others and in part by parental concern that fosters dependence and insecurity. Children develop strong self-esteem and independence through praise for their accomplishments and emphasis on their potential abilities.

Famous people with epilepsy include Julius Caesar, Socrates, Alexander the Great, Tchaikovsky, Van Gogh, Dostoyevski, Dickens, Dante, da Vinci, Mozart and Alfred Nobel.

source: epilepsy.com

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Do You Have Night-eating Syndrome?

* You eat 50 percent or more of your daily food intake after dinner
* You have no appetite for breakfast
* You have trouble falling and/or staying asleep
* When you wake up during the night you often eat
* The foods you eat at night are mostly carbohydrates

When you’re spending more time each night in the kitchen than in the bedroom, you may have a newly identified eating disorder. Called night-eating syndrome (NES), the condition is characterised by a lack of appetite for breakfast; the consumption of more than 50 percent of daily calories after the evening meal, and waking up, at least, once a night to consume high-carbohydrate snacks. To receive a diagnosis of NES, symptoms must have continued for a minimum of three months.

If you have any combination of these signs, consult your doctor.

What is Night Eating Syndrome?

A new eating disorder spells a nightmare for those who suffer from it. Night eating syndrome is an eating disorder that has only been recognized as such since 1999, and affects between 1 and 2% of the population. NES is also characterized as a sleeping disorder. NES is often accompanied by or confused with sleep-related eating disorder (SRED), although the two are distinct.

Night Eating Syndrome is a disorder where the affected individual wakes multiple times during the night and is unable to fall back asleep unless they eat something. Foods eaten during the binge are often high caloric in content and unhealthy. The night eating behavior seems totally beyond the effected individual's control. For these individuals, 35% or more of their calories are eaten after dinnertime. Following the night binge, the person is often not hungry in the morning. Individuals suffering from Night Eating

This is an ongoing, persistent behavior, unlike the occasional late snack or skipped meal that most people have from time to time. In fact, people with this disorder are often unaware of their nocturnal meals, although some feel they won't be able to sleep without eating first. ( Note: a person falls asleep more easily on a full stomach. ) Among those who are aware of their night eating, there is often an emotional component; the diet of the night eater is comfort food.

What are the symptoms or behavior of NES?

People who suffer from night eating syndrome generally:

* Skip breakfast, and go several hours after waking before their first meal.
* Consume at least half their calories after dinner. (Many sources would list this as after 9 or 10 pm; dessert is generally not included, if one is eaten. ). Late night binges almost always consist of carbohydrates. However, this eating is typically spread over several hours, which is not consistent with a typical eating binge as seen in other eating disorders.
* Suffer from depression or anxiety, often in connection with their eating habits. These night eating episodes typically bring guilt rather than hedonic enjoyment.
* Has trouble sleeping in general; see insomnia. Is more likely than the general public to sleepwalk.


To be considered a bona fide disorder, this pattern should continue for two months or more. Syndrome are often caught in the vicious cycle of binge eating during the night and eating less during the day.

Are there Specific Triggers for NES ?

Triggers for Night Eating Syndrome include

* depression
* anxiety
* interpersonal stressors
* boredom
* prolonged dieting
* body image dissatisfaction


Night eating may temporarily relieve the stress of these unwanted feelings, but for the night eater these episodes are unfortunately followed by feelings of guilt, shame, disgust, and further depression. For the person suffering from NES, the eating episodes usually occur in secret and any evidence is often hidden from others. Similar to Anorexics, Bulimics, and Compulsive Overeaters, individuals suffering from NES are often struggling and unhappy with their weight. It is estimated that up to one percent of the population may be suffering from NES. Like Anorexia Nervosa Bulimia Nervosa, and Compulsive Overeating, NES is a disease and cannot be cured with willpower alone.

How is NES different from Binge Eating and Bulimia?

It is different from binge eating and bulimia. Individuals with night eating disorder consume relatively small snacks (with high calorie content) at night but far more frequently. Individuals with binge eating disorder and/or bulimia have very large and infrequent binges.

Can NES be Treated?

Yes. If you suspect that a family member has NES. Suggest that your family member see an eating disorder expert. Be prepared for denial, resistance, and even anger. A doctor and/or a counselor can help them battle their eating disorder. Treatment involves counseling, and paying attention to medical and nutritional needs.

The treatment should be tailored to the individual and will vary according to both the severity of the disorder and the patient's particular problems, needs, and strengths.

NES tends to lead to weight gain; as many as 28% of those seeking gastric-bypass surgery were found to suffer from NES in one study. In fact, while sufferers are not always overweight, one in four people who are overweight by 100 lbs or more are thought to suffer from night eating syndrome. The disorder is accompanied by what sufferers describe as an uncontrolable desire to eat, akin to addiction, and is often treated chemically.

Therapy to increase the natural nocturnal rise in melatonin, reduce the body's adrenal stress response and raise leptin levels or improve leptin sensitivity are options that may help these patients overcome the disorder. Another key may involve the availability of tryptophan, an important amino acid, in the body. More than 70% of the nighttime eating to combat anxiety involved binging on carbohydrates. These foods are believed to increase the amount of tryptophan available for conversion to serotonin, the calming neurotransmitter in the brain that promotes an overall sense of well-being and, in turn, converts to melatonin.

The antidepressant drug Zoloft has shown some ability to help NES sufferers.

NOTE: Addressing hormonal and biochemical imbalances in patients with chronic eating and mood disorders can be crucial for uncovering fundamental causes and contributing factors that underlie cyclical, habitual patterns of insomnia, overeating, and depression.

From Many Source

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